Policy Analysis Program
 
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  INFORMED CONSENT
  DISABILITY POLICY ANALYSIS
  Researchers at the Beach Center on Disability wish to invite you to participate in an analysis of disability law using the Center's computer assisted core concepts tool. The Beach Center on Disability at the University of Kansas supports the protection of human subjects participating in research. The following information is provided for you to decide whether you wish to participate.
  What Will You Do in the Project?
  There is one activity in which you are asked to participate, an analysis. To conduct the analysis, you will register and log onto a website from an internet-capable computer. Provisions of the chosen statutes related to aspects of each of the Center's "core concepts of disability policy" will then be presented to you alongside "model language." Comparison of the provisions with the model language will provide the basis for a score that you will assign to the statute for each aspect. You will also be given the opportunity to comment on each aspect. The analysis may last anywhere from 30 minutes to 2 hours. The researchers will study and organize your scores and comments, and those of others who participate, to compile written reports. The written reports based on the scores and comments will be used to improve policies, practices, and educational initiatives that respond to the needs of individuals with disabilities and their families. If you agree to participate in the study and change your mind later, you may drop out at any time without penalty.
  Risks of Participation
  You will be asked to register before using the analysis program and personal information may be disclosed. There is also the risk that someone could associate you with your score of a statute if the information is not kept confidential.
  Protections to Address Risks
  You are under no obligation and may decline to answer any question you do not wish to address, or even end the analysis, at any time, without penalty.
  Your personal information will not be given, sold, or otherwise distributed to anyone outside of Beach Center Staff. All personally identifiable information will be kept in a secure place and no one outside of Beach Center Staff will have access to such information. Senior researchers at the Center will review and authorize on a case by case basis all access to personal information by non-senior research staff.
  If you decide that you do not want your information used, your information will be kept totally confidential and will not be a part of any written reports. We will address any concerns or suggestions that you have about how information you share with us is used.
  We assure you that your name will not be associated in any way with the research findings.
  Possible Benefits
  You may find that using the analysis tool will increase your understanding of the statute.
  You may find that using the analysis tool will increase your understanding of some of the most important concepts in disability policy creation and implementation.
  Further Information
  If you decide that you do not want to participate in this study or want more information, at any time, contact Matthew Stowe at:

Core Concepts of Disability Policy
Matthew J. Stowe
Beach Center on Families and Disability
3125 Haworth Hall
University of Kansas
Lawrence, KS 66045
(785) 864-0596

  Action Affirming Consent
  By continuing, I affirm that I consent to participate in the Core Concepts of Disability Policy project by using the computer assisted tool for policy analysis, understand the nature of the project, act voluntarily, am over 18 years of age.